CW: Fluid Restriction
Cerebral palsy can limit my independence sometimes. For me, one of the frustrating aspects of cerebral palsy is requiring help with daily activities. It’s hard not to consider other people when you depend on them to live your life.
When you rely on caregivers, that involves waiting. During my freshman year of college, the first PCA I hired was late nearly every day. My mom and a friend often took me to college at the last minute.
I often wonder what it would be like to get dressed or shower with total privacy. Imagine what it would be like to have strangers help you use the restroom or bathe. For many disabled people, this is a reality of their lives. Out of necessity, I’m forced to allow others into locations and situations, most people consider private.
My disability means I am unable to drive. I remember the jealousy I felt when my peers began to get their driver’s licenses. Sometimes I wish I could go grocery shopping alone or visit family members for a weekend.
For many adults my age, life revolves around friends and socializing. However, it is difficult to meet new people when you can’t drive or get into their houses. Finding places to socialize is also challenging. Many bars, restaurants, and music venues are not accessible.
Personal hygiene is another concern. Most bathrooms aren’t accessible to me, which means limiting my fluid intake. Public bathrooms are also challenging for me to use.
Disabled people have the right to make their own decisions. Although I have cerebral palsy and require assistance, I consider myself to be independent. Everyone defines independence differently, but everyone deserves to live on their own terms.