The Long Wait
I have used a walker ever since I was a toddler. Health insurance allows me to get a new one every five years. My PT faxed the letter to the durable medical equipment company on November 8. Yesterday I received an email saying that they never received the letter. It is extremely frustrating that it…
The Fight Continues
2023 has been a challenging year for me. This year has been filled with bureaucratic hurdles. I’ve had to deal with health insurance, the local community college, and the Social Security Administration. I have received two letters from the Social Security Administration. One was a letter stating I had too many assets to continue receiving…
Cerebral Palsy Is Difficult
I have lived with cerebral palsy for 24 years. As a child, cerebral palsy did not impact me very much. I did well in school, participated in extracurricular activities and enjoyed spending time with my family and friends. Puberty was when I first experienced functional shifts. This was frightening. I slowly lost the abilities that…
IDPD 2023
CW: Sterilization Yesterday was the International Day of Persons with Disabilities, a day to acknowledge the world’s largest minority and the challenges they face. The disability community is all too familiar with having to fight for our rights. Because she was “feeble-minded,” Carrie Buck was kept in a state mental hospital. Through three generations of…
Let’s Eat
Cerebral palsy can affect the muscles that are used to help with chewing and swallowing. Chewing and swallowing involve around 30 different nerves and muscles. Poor oral motor control may result in malnutrition and stunted growth. Feeding issues affect 30-40% of those with cerebral palsy. In general, the more severe one’s motor impairments are, it…
Florida’s HCBS Crisis
According to an analysis conducted by a statewide advocacy group, Florida officials in charge of delivering services to people with permanent disabilities have allowed nearly $800 million in state and federal matching money to slip through the cracks over the last two years. That is enough, according to advocates, to provide the 23,000 people on…
Inclusive Workplaces Benefit Everyone
According to a new study from Accenture (NYSE: ACN) in collaboration with Disability:IN and the American Association of People with Disabilities (AAPD), companies that lead in disability inclusion create higher revenue, net income, and profit. Following a 2018 report about inclusion in the workplace more research was done. The subsequent findings were published in a…
Coping with Change
CW: Depression Cerebral Palsy is challenging to live with. Lately, I’ve been experiencing increased spasticity, particularly in my lower extremities. Chronic pain affects me physically and mentally. Spasticity can cause difficulty with completing activities of daily living. For me, spasticity makes dressing, toileting, and showering difficult. The amount of spasticity I am experiencing can change…
The Great Unwinding Is Catastrophic
CW: Surgery Beverly Likens thought she’d done everything she could to keep her Medicaid earlier this year. Then, just before her surgery to treat chronic bleeding, the hospital informed her that her insurance was inactive, putting her procedure in jeopardy. Likens had been diagnosed with severe anemia and had received a blood transfusion in the…
Forced Poverty
CW: Poverty An antiquated policy that keeps disabled people in poverty could be updated. Since 1989, SSI recipients have been allowed to have $2,000 in assets at any given time. Married couples are limited to $3,000. A report from the NCD shows that specific government programs like Medicaid and SSI and Medicaid cover added expenses…
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