Grace Dow Writes:
Life through the lens of disability
Latest from the Blog
Who Will Care for Them?
CW: Filicide & Death For a parent of a child with an intellectual or developmental disability (IDD), there have probably been moments where they have wondered: What will happen to my child when I’m gone? Members of Ireland’s parliament were recently discussing the reality faced by aging parents of adults with IDD. Independent TD Seamus…
We Already Proved It
Kelli Stuart’s 11-year-old son Sawyer has autism and a genetic disorder. His family converted a trampoline into a bed in order to keep him safe. For the last year and a half, Stuart has been trying to get Medicaid to approve an enclosed safety bed. Five different doctors have written letters of medical necessity for…
When Care Becomes a Question
Earlier this year, MassHealth took away my overnight personal care assistant (PCA) hours. This meant that I lost fourteen PCA hours per week. On paper, it was another reassessment and another determination about what support I supposedly needed. Sadly, it was a reminder of how fragile independence can be. I spent almost two months fighting…
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