Grace Dow Writes:

Life through the lens of disability

Latest from the Blog

When Care Becomes a Question

Earlier this year, MassHealth took away my overnight personal care assistant (PCA) hours. This meant that I lost fourteen PCA hours per week. On paper, it was another reassessment and another determination about what support I supposedly needed. Sadly, it was a reminder of how fragile independence can be. I spent almost two months fighting…

What Happens When Medicaid Gets Disability Wrong?

For many people, Medicaid might not seem very political. They might think of it as healthcare coverage for low-income Americans. For many disabled people, Medicaid is far more than a government program. It pays for the services that make it possible to live in the community rather than in an institution. That’s why advocates are…

The Eeorye Phenomenon 

CW: Pain Yesterday I saw a Facebook post from a mother whose son has cerebral palsy. Her son is currently recovering from major surgery. Her son often apologizes for needing help. At his school, they call it “Eeoryeing.” As someone who has cerebral palsy, I knew the feeling she was talking about right away.  My…

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