Grace Dow Writes:

Life through the lens of disability

Latest from the Blog

World CP Day Is Over and the Work Continues

Yesterday was World Cerebral Palsy Day. As the social media posts, awareness campaigns, and messages of support appeared across my feed, I found myself reflecting on what cerebral palsy actually means for me. I have lived with cerebral palsy for 27 years.  When most people think about CP, they think about the physical symptoms. The…

What Is Lost When Disability Data Vanishes

For disabled people, being counted in government health data is about more than statistics. It is about whether our experiences are recognized, whether health disparities are understood, whether researchers have the information they need, and whether policymakers can identify where services and supports are most needed. When disability data disappears, part of the picture of…

“There’s No Way My Daughter’s Going There”

CW: Institutionalization Sue Root remembers the day her daughter Amy was hit by a car while riding her scooter. At eight years old, Amy suffered catastrophic injuries. Doctors explained that Amy might benefit from placement in a long-term care facility, but Root quickly decided that was not an option. For more than a decade, she…

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