Grace Dow Writes:
Life through the lens of disability
Latest from the Blog
What Is Lost When Disability Data Vanishes
For disabled people, being counted in government health data is about more than statistics. It is about whether our experiences are recognized, whether health disparities are understood, whether researchers have the information they need, and whether policymakers can identify where services and supports are most needed. When disability data disappears, part of the picture of…
“There’s No Way My Daughter’s Going There”
CW: Institutionalization Sue Root remembers the day her daughter Amy was hit by a car while riding her scooter. At eight years old, Amy suffered catastrophic injuries. Doctors explained that Amy might benefit from placement in a long-term care facility, but Root quickly decided that was not an option. For more than a decade, she…
Waiting for a Medication That Never Came
CW: Suicide Kenney Blewett was diagnosed with lung disease more than a decade ago. Earlier this year, though, he began experiencing flare-ups which made him feel like he couldn’t breathe. His wife, Cindy, said Blewett described those flare-ups as “the scariest things in the world.” While the episodes only lasted a few minutes, they also…
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