Care Can’t Wait:

My independence means everything to me as a disabled woman. I have lived on my own for over two years now. PCAs are vital to my ability to live independently. Without PCAs, I wouldn’t be able to use the bathroom or get dressed. My PCA is the person who allows me to live in my… Continue reading Care Can’t Wait:

Resilient And Tired:

CW: Depression Cerebral Palsy has taught me to be resilient from the day I was born. I was born in September 1999 in Kolkata, India. I was born prematurely as well. At nine months old, I came home to my family. I have had three operations, countless hours of PT, and many other procedures over… Continue reading Resilient And Tired:

Choice Is A Privilege:

Yesterday I read a post on Facebook about how it is difficult not to have the choices everyone else does because of a disability. For instance, I couldn’t move to another state like most people. I rely on Medicaid which pays for my PCAs. Medicaid is run by individual states, meaning services can vary widely.… Continue reading Choice Is A Privilege:

A Question Of Worth:

CW: Depression Recently, my depression has gotten much worse. As a child, I didn’t understand that Cerebral Palsy would affect my adult life. I assumed that once I was an adult, I’d eventually work full-time, get married and perhaps have children. I wasn’t going to let Cerebral Palsy hold me back from anything. I wish… Continue reading A Question Of Worth:

Life The Way I Want It:

Yesterday I read Justin Smith’s blog post about the challenges adults with disabilities face. It’s incredibly challenging for adults with disabilities to live independent lifestyles. I am fortunate to have a PCA that provides 24/7 care. Yet I’m only approved for 56.5 PCA hours per week under Medicaid. As a 22-year-old, I want to live… Continue reading Life The Way I Want It:

The Path Of Life:

CW: Depression & Pet Loss: I’ve been thinking about my path in life lately. I decided to attend my local community college to pursue an English degree this fall. I am very nervous and trying to remain positive. I have loved school as far back as I remember. English has always been my favorite subject.… Continue reading The Path Of Life:

Lost Cause:

Lately, my depression has been getting worse. I can’t help but feel like I am lost right now. Four years ago, I felt like the world was my oyster. I had gotten into college and did well academically. I was excited and planning for my future. I never thought that Cerebral Palsy or my mental… Continue reading Lost Cause:

Pandemic Anxiety:

CW: Death & Eugenics: For the past few years, I have been more anxious due to the COVID-19 pandemic. As someone with Cerebral Palsy, it has been even more challenging to live during the pandemic. It’s frustrating to realize that society sees people like me as disposable. Rochelle Walensky, the director of the Center for… Continue reading Pandemic Anxiety:

The Ugly Laws:

CW: Ableism & Eugenics Several American communities had ugly beggar ordinances. These lasted from the 1860s until the 1970s in some places. These regulations were later referred to as ugly laws. Poor and disabled individuals were the targets of these policies. For instance, a law from 1867 in San Francisco stated that it was unlawful… Continue reading The Ugly Laws: