Life’s a Puzzle

Living with a disability often feels like navigating a maze or solving a puzzle. Growing up, I assumed my adulthood wouldn’t look that different from my peers. I had high expectations for myself. I knew I wanted to go to college to get my bachelor’s degree, and find a job I enjoyed.

I knew that cerebral palsy would make some things more challenging. I wasn’t going to major in engineering or mathematics in college. However, I had no idea just how difficult it is to figure out adulthood as someone living with a physical disability.

Last week, I met with the disability services office at the local community college. I was having difficulty understanding my reasonable accommodations. Unfortunately, the meeting only added to my confusion.

I couldn’t understand why I didn’t receive a peer notetaker in my remote classes. In the past, I’ve received a peer notetaker in all of my classes regardless of whether or not they were online. It frustrated me that the college couldn’t help me access the accommodations I need. My concerns were dismissed.

I received a letter from the Social Security Administration in August. The letter informed me of an overpayment earlier this year. However, the letter indicated that I had received the correct amount. I was confused as to how the Social Security Administration determined that I had been overpaid.

Unfortunately, I still had to appeal their decision. I am still waiting for a decision. If the appeal is unsuccessful, the Social Security Administration will begin deducting a set amount of money from my check every month.

I am due to receive a new walker soon. My PT has already written the letter of medical necessity but he still has to submit it to my insurance company. After waiting nearly three weeks my physiatrist mailed me a new prescription for PT. Once the letter is submitted, I must wait for my insurance company to decide whether or not the request is approved.

The people who work for my insurance company have never met or spoken to me. I wish health insurance companies understood just how important medical equipment is for disabled people. Without my walker, I would be stuck in bed all day.

Cerebral Palsy means that I am at the mercy of everyone around me sometimes. I am tired of having to fight for things that I need. Disabled people shouldn’t have to fight for things they need to live their lives.

1 comment

  1. Those whose job it is to assist you shouldn’t put up additional barriers. People with disabilities certainly don’t need to jump through any more hoops to access the supports they need to lead a good life.

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