CW: Depression & Pain:
For me, chronic pain worsens my depression. Most days, my spasticity is mild. There are some days when it is extremely painful, which leaves me frustrated. Sometimes, it affects my sleep as well.
Movement is difficult for people with Cerebral Palsy. Last week, I was uncomfortable while sitting at a picnic table. I used to be able to sit anywhere without my spasticity kicking in. It saddened me that I couldn’t eat dinner comfortably.
When I watch home videos, I’m reminded how much my function has changed. I can’t crawl on my hands and knees anymore. Sitting on the floor causes me too much pain now. I wish movement were easy for me again.
Before puberty, movement was much easier for me. I didn’t need a power wheelchair when I was young. At the time I didn’t realize that a wheelchair would be helpful. Looking back, I wish I had gotten a wheelchair sooner.
Chronic pain is hard to deal with. If I don’t feel well one day, please don’t take it personally. I do the best I can. It is tough to be in pain.